Ethnic inequities in genomics and precision medicine review report

The NHS Race and Health Observatory and the University of Nottingham have today published landmark findings which reveal the lack of trust and targeted engagement by health commissioners, regulators and researchers. In the ‘Ethnic inequities in genomics and precision medicine review report’, ethnic minority groups are found to be largely absent from participating in genetic studies.

The report outlines how this is leading to poor health outcomes for diverse groups across a range of health conditions. This comprehensive review, using mixed-methods research methodology, presents a series of solutions to the challenges and action-focused recommendations for change. It is informed by an examination of 70 policy and guidance documents, spanning the period between 2017 and 2022, in which only 50 included broad and limited ethnicity information linked to precision medicine and/or genomics.