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The NHS Race and Health Observatory has today issued a new survey for stakeholders and communities to engage over preferred terminology for describing ethnic identity.

A recent parliamentary inquiry into avoidable deaths and failures of care for sickle cell patients in secondary care identified that too often acute painful sickle episodes are poorly managed by the NHS.  It recommended that the NHS Race and Health Observatory (NHSRHO) undertake a study into sickle cell care in relation to race and ethnicity.

With Professor Ara Darzi soon to report on his review of the NHS, the RHO has been making the case that race equity should be a key metric in any analysis of the service’s performance.

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This report draws on a longer study we commissioned from The King’s Fund (Chauhan et al 2021).

For this report we have analysed the quality and consistency of ethnicity coding within widely used health datasets, in order to inform users of ethnicity data and identify the actions needed to improve the quality of the underlying data. Along with providing insights for data users, the report sets out recommendations for policy-makers and organisations that generate and regulate health data. 

Following the announcement today by the UK government, the NHS Race and Health Observatory warmly welcomes the announcement of the partnership with the US Centre for Disease Control’s Office of Minority Health and Health Equity.

Over the years, having reached a point of exasperation, I accepted the struggle, hurdles and challenges to overcome can’t take place in isolation.

Familial hypercholesterolemia is a disorder that is typically inherited from a parent causing high cholesterol levels.  Without treatment, it can cause early heart attacks along with a higher risk of heart disease.

In April 2021, the NHS Race and Health Observatory published a rapid review with recommendations into the accuracy of Pulse Oximeter readings for people from black, Asian and minority ethnic backgrounds.