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A new report which compares and contrasts disparities found across rare genetic diseases has been published on World Sickle Cell Day, today, 19 June.

In a unique pairing, the NHS Race and Health Observatory has announced the signing of a landmark agreement with the National Institute for Health and Care Excellence (NICE) to tackle persistent and systemic ethnic health inequalities.

Barriers faced by children and young people living with sickle cell as they transition from NHS paediatric to adult health care providers are set to be explored and tackled.

The Observatory’s proposed work programme on children and young persons’ sickle cell care focuses on identifying and rolling out optimal transition (from paediatric to adult services) care.

First-hand accounts of patients suffering acute, painful sickle cell episodes reveal poor experience of hospital care outlined in a new report published today.

General interventions and medications such as hydroxyurea, morphine and blood transfusions were hit and miss, usually giving relief for a period but the sickling would return with vengeance.

Barriers to treatment, support and emergency healthcare faced by patients experiencing acute painful sickle cell episodes will be investigated by the NHS Race and Health Observatory.

A new programme of work to understand the needs of sickle cell patients and identify improvements in managing acute painful sickle cell episodes is being undertaken by the NHS Race and Health Observatory

The NHS Race and Health Observatory is pleased to announce the new appointment of a medical advisor to explore sickle cell inequalities in NHS healthcare delivery.